DECODE is a collaborative research project funded by the National Institute for Health and Care Research (NIHR) that brings together researchers, clinicians and patients from seven UK universities and partner hospitals to Develop and Enhance the Care coordination for people with intellectual disabilities and multiple long term Conditions (DECODE).

The partnership includes Loughborough University, Leicestershire NHS Partnership Trust, University of Leicester and, Swansea University, Kings College London, University of Plymouth, De Montfort University and the University of Nottingham.

Team photo from 2022 Workshop
Team photo from 2022 Workshop

Our PPIE (Patient and Public Involvement and Engagement) groups – comprising people living with learning disabilities and their carers – are essential to the success of our work.

Here’s what two of our PPIE participants say about DECODE.